North East London Commissioning Support Unit (NEL CSU)

Who is the service for?

We cover four of the five Clinical Commissioning Groups (CCGs) in Norfolk:

Continuing care is a way of funding health care packages for babies, children and young people (from birth to 18 years old) with complex healthcare needs whose needs cannot be met by existing mainstream or specialist health services.  These complex needs may be as a result of disability, accident or illness.

Children and young people are assessed using the National Framework for Children and Young People’s Continuing Care (DOH 2010).  This framework is designed to support CCGs in determining if a child’s needs are such that they can only be met through a package of continuing care.

The framework also sets out an equitable, transparent and timely process for assessing, deciding and agreeing these bespoke packages of care.

Each care package will be commissioned to meet the individual needs of each child/young person and their family.

How to refer to us

In conjunction with the National Framework for Children and Young People’s Continuing Care (DOH 2010), a children’s community nurse or hospital nurse that knows the child/young person well,  and has identified them as having an increased health need that isn’t or can’t be met by existing universal or specialist services, can complete a Children’s Continuing Care referral/assessment form and submit with supporting evidence to the Children and Young Person’s Continuing Care Administrator.

How to contact us

Healthcare professionals wishing to refer a child or young person can contact the Children and Young Person’s Continuing Care Administrator to request referral paperwork on:

Children and Young Person’s Continuing Care Administrator: 01603 257 260

How does the service change between Children’s Services and Adult Services?

Our services cover up to 18 years old. Adults will need to have their needs assessed using the National Framework for NHS Continuing Healthcare and NHS-funded Nursing Care to see if they are eligible. A summary of the Transition process is below:

  • At 14 years of age, the young person should be brought to the attention of adult continuing care services
  • At 16 years of age, screening for NHS continuing healthcare should be undertaken using the adult screening tool
  • At 17 years of age, an agreement in principle for adult NHS continuing healthcare should have been made
  • At 18 years of age, full transition to adult NHS continuing healthcare or to universal and specialist services should have been made